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Patient-Reported Outcome Measures

Most employers have little or no access to summary information about their employees’ care experiences and outcomes. Yet tracking the effectiveness of health treatments and interventions is pivotal to improving care quality, enhancing the patient experience, supporting value-based care and reducing costs.

PBGH is leading a national initiative to achieve universal adoption of patient-reported outcome measures. Patient-reported outcomes offer an ideal means for gaining insight into the care process. They support more accurate and detailed assessments of treatment efficacy and also help reduce inappropriate and costly care. In addition, patient-reported outcome measures serve as an accurate predictor of an employee’s quality of life, productivity and ability to return to work.

PBGH has developed a comprehensive, multiyear plan for achieving universal adoption of patient-reported outcome measures. Our strategy involves:

  • Demonstrating the feasibility of collecting patient-reported outcomes at scale in communities nationwide
  • Creating momentum behind patient-reported outcome implementations by recruiting the support of influential stakeholders, including government agencies and major payer, provider and consumer groups
  • Encouraging the adoption of consistent payment programs and the data infrastructure necessary to support universal use of patient reporting in routine care

As part of this effort, PBGH is engaging in federal policy discussions to support the integration of self-reporting in Medicare payment reform programs and other care redesign initiatives.

 

Programs and Initiatives


Patient-Reported Outcomes — Oncology

Read More about Patient-Reported Outcomes — Oncology

This pioneering PBGH patient-reporting program seeks to track variations in symptoms experienced by patients undergoing curative chemotherapy to help optimize their treatments and ease their transition to cancer survivorship.


Patient-Reported Outcomes — Mental Health

Read More about Patient-Reported Outcomes — Mental Health

PBGH develops, implements and tests patient-reported mental health measures to improve treatment.

Resources

Public Commentary: Patient-Reported Outcomes Measures Oncology

Patient-Reported Outcomes Measures Case Studies

Patient Outcomes Matter Project Brief

Patient Outcomes Matter Issue Brief

Patient-Reported Outcomes Measures Oncology Technical Expert Panel Summaries

Patient Reported Outcomes Measures Comment Letter Oncology Care First 12/11/19

Patient Reported Outcomes Measures Comment Letter 9/29/19

Patient-Reported Outcomes—Oncology Public Commentary Report

Involving Employers in Patient-Centered Outcomes Research

Using Outcomes Information

Program Staff

Valerie Kong
Senior Manager, Transparency
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PROMs Strategy Policy Advisory Committee

Andrew Baskin, MD
National Medical Director, Clinical Quality, Aetna
Judith F. Baumhauer, MD, MPH
Medical Director of Patient Reported Outcomes and PROMIS University of Rochester Medical Center
Zahid W. Butt, MD, FACG
President & Chief Executive Officer, Medisolv
John Caloyeras, PhD
Director, Global Health Economics, Value-Based Partnerships Lead, Amgen
Christopher Dezii, RN, MBA, CPHQ
Retired (Formerly Director, Healthcare Quality and Performance Measures Bristol-Myers Squibb Company)
Sara van Geertruyden, JD
Executive Director Partnership to Improve Patient Care
Aparna Higgins, MA (Chair)
Policy Fellow, Duke-Margolis Center for Health Policy
Gary Okano, PhD
Director, Health Economics & Outcomes Research, Bristol-Myers Squibb Company
Lucia Savage, JD
Chief Privacy and Regulatory Officer, Omada Health
Shoshanna Sofaer, DrPH, MPH
Independent Consultant, Health Research & Policy
Neil W. Wagle, MD, MBA
Chief Medical Officer, Devoted Health

National PROMs Strategy Steering Committee

Shantanu Agrawal, MD, MPhil
President and CEO, National Quality Forum
Amy Compton Philips, MD
Executive Vice President and Chief Clinical Officer, Providence Health & Services
Helen Burstin, MD, MPH, FACP
Executive Vice President and CEO, Council of Medical Specialty Societies (CMSS)
Patrice Holtz, BSN, MBA
Sr. Advisory, Quality Performance Measurement, Policy & Programs Group, Center for Medicare and Medicaid Innovation (CMMI)
Kelsey Lang, MPP
Senior Director, Public Affairs - Policy, Novo Nordisk
Sally Okun, RN, MMHS
Director, Policy & Ethics, UnitedHealth Group R&D
Derek Robinson, MD, MBA
Vice President of Enterprise Quality and Accreditation, Health Care Service Corporation
Dana Safran, Sc.D.
Senior Vice President, Value Based Care & Population Health, WELL Health, Inc.
Michelle Schreiber, MD
Director, Quality Measurement & Value Based Incentives Group (QMVIG), Centers for Medicare & Medicaid Services
Rachel Clark Sisodia, MD
Senior Medical Director for Specialty Care and Patient Reported Outcomes, Mass General Brigham
Tracy Spinks
Director, Medical Clinical Operations – Oncology Value Creation Team, UnitedHealthcare
Reena Duseja, MD
Chief Medical Officer, Quality Measurement & Value Based Incentives Group (QMVIG), Centers for Medicare & Medicaid Services
Aparna Higgins
Liaison for Policy Advisory Committee, representing America’s Health Insurance Plans (AHIP)
Tanisha Carino
Retired, representing GlaxoSmithKline
Evelyn Whitlock
Retired, representing Patient Centered Outcomes Research Institute (PCORI)
Kate Goodrich
Retired, representing CMS